Tuesday, May 5, 2009

From May 4th

Yesterday, Harley had yet another MRI, but this one was real quick and didn't need sedation. Mommy actually went through it with her! Mommy also was a bad girl and almost didn't take out her piercings, belt, glasses, phone or her debit card out of her pocket. Good thing the man running it noticed and asked me to take everything off! I laid down on top of Harley, 'Superman Style' as the MRI tech described it, and held her head really still. Both of us had ear plugs in, but we could still hear all the noises. Harley was FACINATED with them! She was wide awake the whole time (maybe 5 or so minutes) and kept looking around at where the sounds were coming from. She was such a good girl and stayed really still for Mommy!They've been weaning her off one of her anti-seizure drugs, Atovan, and that's helping with her being more aware. She's had her eyes WIDE open alot more and she's 'talking' to us, too. She mostly just whines and groans, but I can tell the difference from when she's upset and when she's trying to talk to us.A surgeon came in today and told Cameron they will probably do the surgery to put in the GJ tube on Thursday. I'm going to see if they can move it to Friday so I can be there and not take off any work, but we'll see. I've been told it's not a risky procedure, so that's good news, but I'd still like to be there when she gets it done.Once again, we all REALLY appreciate all the love, support and prayers from everyone. I never thought one little girl could touch so many people's hearts and lives. If nothing else, Harley has taught us all to keep fighting, because life is DEFINITELY worth living. Every day is a wonderful gift, and every loved one in our lives, be it family, friends, co-workers, etc., playes a role in who we are and who we choose to be. We have to be thankful for those people because they help us through the hard times and celebrate the good times with us, too. I am thankful for each and every one of you who come to Harley's page and check in on her progress. I feel so blessed that I have such a large network of support. I honestly couldn't have been so strong without all of you and your kind words. Each and every message has helped me through this rough time, wether it's just 'I'm so sorry you have to go through this, I'm praying.' to a whole novel about a personal experience you've been through and telling me if you can do it, so can I. Sorry this is so long, I'm done now. : )

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