8-11-09

Yesterday they did an ultrasound on Harley's heart and the blood clot is completely dissolved! Yay! She was moved from the 7th floor PCTICU to the 2nd floor, normal Pediatric unit.

Honey Bear didn't have a very good night last night. She ran a fever of 102 degrees and they couldn't keep her Oxygen stats up. They took her off her feeds and put her solely on IV fluids because she was having such a hard time. Guess we'll just have to see how today goes...

8-10-09

Wow, Harley is such a talker! Over the weekend she was awake and alert, opening her eyes and talking to us! One night I got up to use the restroom and was quiet so I wouldn't disturb her and then I hear "Mom!" from Honey Bear! She sure knows when someone's in her room and moving around! Over the weekend I heard her say 'Mom', 'No', 'Yeah', and 'Baby' (I asked her if she wanted her doll and she said 'Baby'!). It's so exciting to actually be able to converse with her! I can ask her 'Do you want water?' and she'll let me know (we put some in a water bottle cap and pour a little at a time in her mouth).

Besides that there's good news and bad news. Good news is that the blood clot is still shrinking and the doctor said they'll do another ultrasound today to make sure the clot didn't just move. Lookin' good towards going home!

Bad news is that her liver is still failing. The whites of her eyes are turning yellow, a trait that happens due to a failing liver. They put her on a new med that'll help her liver function, I hope it helps and maybe just maybe will 'kick-start' it into working again? Ya never know...

A few pictures of Harley

This was 7/20/09
8/02/09

This is from today

Shadow Box For Harley's Mom

I have put up a fundraiser to get a shadow box for Katie. You can click on the link below to donate.
Fundraiser

8-8-09

Not too much has been going on, which is actually a good thing! The doctors are focused on getting the blood clot the rest of the way dissolved; it's on the right track, luckily! Her belly has been pretty swollen, so they upped the amount of Lasiks she's getting. She's been running fevers on and off, so she gets Tylenol as needed and they're running cultures on everything to see if there's an infection anywhere. She's been on antibiotics just in case. She's not really having too many seizures, if any at all, really! She still has some small tremors on and off, but neurology stopped by and said if we're happy with they way she is (which we are!) then they're happy and they have nothing else they want to do to her. Yay! One more step closer to home. Speaking of which... (knock on wood) the nurses have been mentioning she's close to going home! (Yay again!) She'll most likely be sent home with the Lovinox shots (blood thinners). Cameron's going to be the one to give them, I can't! Even so, we're willing to give her a few shots a day to be able to be comfortable at home again. <3

8-3-09

Internet, phones & cable have been down all day at work until now so I'm going to have to update real quick before I get off at 5:30pm. : D

Wow, what an improvement since Thursday! They put her on TPA (a risky blood thinner [but potent] that they don't normally use because of the risks) which broke her blood clot down enough to take her off the TPA and put her on Lovinox, a normal blood thinner given as a shot in her belly. It has fewer risks and she can even be sent home on it if need be.

Her seizures have once again lessened (yay!) and she's more awake, too. She was even yelling at the nurses when they bothered her this weekend and opened her eyes more! She's got her little attitude back, it's so cute! Okay, that's the quick update for now. I'll try and update again later, gotta get to the baby! = )

A little update

Harley's blood clot is even smaller! Now she's on a normal blood thinner given via shot in her belly. She is also more awake and has her little attitude back!