tag:blogger.com,1999:blog-22679259482008014732024-02-19T19:06:47.531-06:00Harley CarsonHer Journey with Alpers SyndromeMommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.comBlogger66125tag:blogger.com,1999:blog-2267925948200801473.post-64043992868656000912011-05-19T22:33:00.001-05:002011-05-19T22:33:50.114-05:00Harley Is Going To Be A Big Sister<strong><span style="color: rgb(128, 0, 128);"><span style="font-size: 16px;"><span style="font-family: Comic Sans MS,cursive;">That's right, Harley's going to have a little sister! And being the good big sister she is, she looked out for her and made sure she didn't have Alpers! Katie is 28 weeks along and due July 22nd. I just wanted to let all of you know. </span></span></span></strong>MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-52206972688967967552010-01-05T11:06:00.000-06:002010-01-05T11:23:49.512-06:00More signs for Harey..<strong><span style="color: rgb(255, 0, 255);"><span style="font-size: 16px;"><span style="font-family: Comic Sans MS,cursive;"><span style="color: rgb(0, 0, 255);"><span style="font-family: Comic Sans MS;"><b><span style="font-size: 14pt; line-height: 115%;"><span style="font-family: Comic Sans MS,cursive;"><span style="font-size: 16px;"><span style="color: rgb(255, 0, 255);">Fourth sign: On New Year's Eve, Harley sent us a sign by moving Mommy's 'Happy Birthday' balloon! It was floating right by the door, hooked to a picture of Mommy on the wall, but when I came in the room around 10pm that night (to charge my phone) it had moved! It was by my bedside, just floating there. There were no fans (or any air circulation for that matter) and it's never moved before (my birthday was on 11-19, so it's been there a WHILE). How awesome is that? I love my little girl so much! <3<br /></span></span></span></span></b></span></span></span></span></span></strong>MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-87146222273323381522009-12-21T11:37:00.001-06:002009-12-21T11:37:43.856-06:00Fire Fighters.On Thursday night around 7 or 8pm the firefighters who came for Harley back in July stopped by our apartment to see how Harley (and us) were doing! It was such a sweet gesture!<br />I heard a semi in our apartment complex and just expected some car to be towed. When we looked out our window, we saw the fire truck pulling up outside our apartment. We were just worried they were there for our neighbor (she's my age [young] with a daughter that's the age Harley would be and she was sick the other day...) so I looked out our peephole to see if they were going next door and told Cameron 'They're actually coming here...' He answered the door and they were like 'Do you remember us?'<br />We talked for a while and they told us they still talk about us at the station and about how good we took care of Harley. They were genuinely impressed! It touched our hearts that they still thought about Harley and us. We told them Harley passed and they gave us their condolences. They said the day they came for Harley they wrote down our address so they could come back and check up on her, on us! They were so sweet! We want to do something for them like bring them all lunch one day down at the station. My cousin happens to also be a firefighter (different city, though) too, so I'm going to ask him what we could do for them. I just still can't believe it! I am so touched! I'm so glad Harley touched the lives of so many. Every day it seems I find someone else who Harley (or her story, even) has touched and how it changed their lives, if even for just a little bit. I love Harley so much, she still doesn't cease to impress me, even in Heaven. <3MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-63007408086997321152009-12-09T14:23:00.000-06:002009-12-09T14:24:28.746-06:00The Compassionate Friends.So I finally felt up to it (and didn't forget) and went to my first meeing of The Compassionate Friends. First off, I couldn't walk in the door without breaking down and crying. Besides me, the newest person lost their son a year ago in September (it's been about 3 months now for me, doesn't seem like it, though). Hoenstly, bad first meeting to go to (it was their holiday celebration), but I'm so glad I did. They had a very emotional candle lighting for all the lost kids and everyone (even me) went up, lit a candle and put down a picture of their loved one and said "I light this candle for my (son, daughter, etc.), (name)" etc. It was so hard! Oh, and there was a slide show of all the lost kids and of course it was put to really sad music. Afterwards they had a pot luck dinner with everything from home made meatballs to Jack in the Box tacos. It was awesome! I tried not to eat too much, though because my husband had dinner waiting at home. Overall, I met some wonderful people there who know the loss I'm going through and are able to help me first hand. Their meetings are once a month, which isn't bad. I think I'll fit in just fine there and I'm really glad I decided to finally go to a meeting. = )MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com2tag:blogger.com,1999:blog-2267925948200801473.post-64020822845861515232009-11-25T12:48:00.001-06:002009-11-25T12:48:37.823-06:00Not Having Another Baby Just YetI ended up going ahead and getting my depo (birth control) shot. My husband said he just isn't ready yet. He thought he was, but he's not and that's all that matters. I'd rather wait longer than necessary rather than not long enough. Thanks, ladies, for all your continued support; we sure need it. <3MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-6863465785968898632009-11-04T17:28:00.001-06:002009-11-04T17:28:34.679-06:00Another baby?I've been kind of wanting another baby, but my husband's been hesitant on the idea. We visited the in-laws this past weekend and while we were there we FINALLY stopped fighting so much and agreed to be more patient with each other. (YAY!) Cameron's been saying he NEVER wants anymore kids because Harley was PERFECT (and looked like him) and there's no way any kid could EVER come near how perfect she was. Well, when we were visiting the in-laws Cameron meantioned having another baby (FIRST time he's ever mentioned it). He asked what I thought about it because he said that's the only way he sees his life getting better instead of worse, since his family has a history of alcoholism and he's headed down the same path if something doesn't change. We talked about it and our fears and I think we may just be TTC here soon. At 10 weeks gestation we'll be able to do genetic testing to see if the baby has Alpers like Harley and we've agreed that if it does we'll terminate the pregnancy. There is no way we can put another one of our children through the suffering that Harley went through. It hurts me so bad to agree to that, but we ourselves can't handle it, either. I don't want to have the baby and just wait until the day it starts having seizures, knowing it's the end of their short life; it's just not fair to any of us. We still aren't 100% sure (and my mom will NOT like this, but it's not her life) but he threw the idea out there and that's a start! I'll let you all know what happens as it occurs. = )MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com5tag:blogger.com,1999:blog-2267925948200801473.post-79293347749707591392009-10-01T18:23:00.001-05:002009-10-01T18:23:41.274-05:00Signs From HarleyI wanted to share with everyone the signs we’ve gotten so far from Harley! Here goes:<br /><br /><br /> <br />First sign: Cameron was lying in bed one night, really missing Harley. He rolled over and made a little spot for her, like she was really there. Next thing he knows he can actually FEEL her there! She knew he needed her so she came and visited him! How cool is that? <br /><br /><br /> <br />Second sign: I was in the shower, washing my hair, when I realized my left pointer finger hurt. I looked down and see an indent like one from a ‘hair tourniquet’. Let me explain: When Harley was about 4 or 5 months old, we were giving her a bath and noticed one of my hairs wrapped around her finger on her left hand (it may have even been the same finger!). We tried to cut it off, but it was on too tightly. We took her to Urgent Care, where they told us this was actually quite common. The hair gets wrapped around the finger and then starts to tighten, hence the name ‘hair tourniquet’. They had to poke and prod her poor finger with a needle to try and cut the thing off. Poor baby girl. They almost had to send us to the ER! They finally got it off and her poor finger had such a deep cut on it from that stupid piece of hair. We had to put antibiotic ointment on it to make sure it didn’t get infected. Anyway, so I look down and see the exact same mark on MY finger. There is NO way my hair made that deep of an indent in my finger. Crazy thing was it was only on the top of my finger! It went away after a few minutes, but that had to have been Harley!<br /><br /><br /> <br />Third sign: Last night, I brought 6 huge balloons (they took up my whole backseat!) and a plant with yellow flowers to Harley’s grave. I tied the 6 balloons onto a weight and then onto a garden stake we have there. I only tied 1 knot, but figured with 6 huge balloons on 1 side of the ribbon and a weight on the other end, there’s no way the balloons should come untied, right? Wrong. I then bent down to try and get some wax off some fake flower petals that were in a candle holder my sister-in-law, Rebecca, made for Harley’s gravesite. I noticed out of the corner of my eye that the balloons were a little farther away than they should be. I looked up and they had COME OFF THE GARDEN STAKE! They only floated a little ways away, so I got up, grabbed them, and then tied them back on the garden stake with SEVERAL knots this time. I didn’t realize it then, but that was Harley playing around! My little girl is still full of mischief… <br /><br /><br /> <br />It’s so nice to know that Harley still has her playful attitude. She’s still the same little trouble-maker she was here on Earth. We love and miss you, Honey Bear! You'll always be my little girl. We’ll see you again one day in Heaven. <3MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-79487671356250168942009-10-01T18:22:00.001-05:002009-10-01T18:22:52.298-05:00The Day Harley Earned Her WingsLet me just start by saying Harley had the fatal, genetic, mitochondrial disorder Alpers Syndrome. It ultimately caused her to pass (death certificate says 'Cardiorespiratory Failure'), but I'm pretty sure it was a mix between her liver failing and causing her to swell so much she had trouble breathing because it pushed on her lungs, and my poor baby already had pneumonia all over both lungs as it was. She did SUCH a good job, I'm so proud of her! The nurses didn't expect her to make it through the first night in the PICU (Friday) without being on a ventilator, but she made it 3 nights and a day! <br /><br /><br />The day she passed (Monday), we had to decide on the brain surgery in the morning, first off and the neurologist and neurosurgeon both said we could put it off (from looking at the CT scan earlier that morning), so we did. Then, they did another chest x-ray and saw the pneumonia was getting worse. Then they did an x-ray on her belly because it was the most swollen we'd ever seen and it wasn't getting better. We had a scare that there was an air bubble near her liver (?), and if there was we'd have taken her home right then and there because that's a death sentence. <br /><br /><br /><br />Turns out it wasn't, so we went home to take showers and got a call from my mother-in-law that they were going to put her on a ventilator because her stats were dropping and we needed to get back; they were going to try and wait for us. We hurried back and literally RAN through the hospital to her room. I was catching my breath when my husband asked if I told her I loved her. I said not yet and gave her a kiss and said I loved her and as soon as I backed away from the bed the nurse yelled for the crash cart and everyone came in their yellow gowns (contact precaution for Harley's well-being) and started giving her epinephrine to get her heart started again, did CPR and bagged her. The doctor was yelling orders to everyone and my mother-in-law, husband and I were just freaking out crying and trying to stay out of the nurses' and doctors' way. We kept yelling encouraging words at her "Come on, Honey Bear! You can make it! Big girl! We're so proud of you!" through our tears and I kept rubbing her left foot because that was all I could reach without being in their way and I got Cameron to do the same. <br /><br /><br /><br />They kept checking her pulse and saying she had a weak heartbeat, so we felt hope until the doctor pulled Cameron and I aside and she said they'd been trying to resuscitate her for 20 minutes and she didn't think she was coming back. It didn't even seem like a minute had passed. She then went to go oversee the nurses trying to bring her back and we cried and waited probably a minute or two more (I have no conception of time for when this happened) then decided we needed to let her go. We went to the head of her bed while they still did CPR and ran our fingers through her hair and kissed her and cried. We told her how much we loved her and how so very proud we were that she fought this long. I told her to say hi to my Uncle Wayne and (grandpa) Pa (in Heaven) for me. We then told them we wanted to stop, so they did. I remember watching them take all the lines off her and take the tube out of her throat from bagging her. They let us hold her and sit with her and our nurse, Bree, gave her other patient to another nurse so she could stay with us. She was so nice, I will never forget her. <br /><br /><br />When I was holding her I asked my mother-in-law to call my parents and tell them because I couldn't through my crying. I also asked her to call my boss, Ron and let him know, but when she did my husband grabbed the phone and told him for me (my husband used to work at my job with me, so he knows my boss). The first person I called myself was my co-worker, Michelle. She had just lost her 27 year old brother suddenly and unexpectedly a week or so before and she's the 1 co-worker I'm closest to and can tell anything to. I then believe I called Ivy (MommyIvy- CafeMom) because she's been such a help updating everyone for me and also because the CafeMom ladies raised over $200 for a shadowbox with a bronzed hand and foot print and I wanted to make sure I got that done because it meant allot to me and (I'm sure) all the ladies who helped raise the money. After that I think I sent a quick text to everyone to let them know and to also say I'm not responding because I was still spending time with Harley. The pastor also came (one I didn’t know yet) and said a prayer with us over her and gave us his card if we needed anything. I have no idea what I did with it, maybe it’s in the ‘So your child died…’ packet. (That’s not what it’s called, it’s very sensitive and informative. I read through most if not all of it that night because I didn’t know what else to do.)<br /><br /><br />About that time my husband was freaking out and had to leave. He started packing all of our stuff into a wagon that the nurses brought us. The social worker (I think) came in and he brought some purple ink and cards to do her handprints and footprints for us. I asked for 2 of them, 1 for me & 1 for Cameron. They also did clay hand and footprints, too. Those didn’t turn out too well and that night I wrote her name and birth and death dates, then tried to smooth out the cracks with water and it ended up growing mold (didn’t know it’d do that, I’m so upset over it...). We took off the purple hospital gown she was wearing and kept it, instead putting her in a sundress that my mother in law bought her. It was white on the top, then light green then turquoise on the bottom. It was sleeveless with a little frilly on the straps. My parents showed up about the time Cameron started packing, maybe a little before. He ended up driving home and dropping his mom off and I went home with my parents because I wanted to wait for the lady who does the bronzed hand and footprints. <br /><br /><br />I remember almost every time I’d sit her up to readjust her on my lap her nose would bleed, but it wasn’t just blood, it was clear, watery liquid with some blood in it. I kept wiping her nose off like she was still alive, still talking to her and saying things like “Your nose is leaking, Honey Bear. [Wipe her nose] There. That’s better.” After a while I stopped crying and just held her and rocked her (I was sitting in one of those gliding chairs.). I kept rubbing my fingers through her hair and touched her face and just looked at her. After a little while the blood in her body started to ‘pool’ since her heart wasn’t circulating the blood anymore and she started to get dark red blotchy patches on her feet. I rubbed them and they’d go away. She also turned more yellow. I look back at the pictures and right after she passed (when the only pictures are of Cameron and I bawling our eyes out) she had a more normal skin tone, then the later pictures she was more yellow. <br /><br /><br />It felt like forever I was sitting there with her, but also like it was 5 minutes. It couldn’t have lasted longer, or shorter. Confusing, I know, but the time drug on in a sense, but also sped by. The lady finally came to do the bronzed prints (maybe around 11pm or 11:30pm? She passed at 9:22pm.) and apologized for being ‘scrubby’ (like we looked any better) and late, but she had a long drive and tried to shove down dinner, too. We didn’t mind. She was very nice and caring, helped that I had cried myself dry, too. Harley’s last nurse, Bree, stayed in the room the whole time to answer questions and be there for emotional support. The lady mixed up the clay (4 of them) and put them on the meal tray holder thing for a flat surface. I held Harley with her back to my chest and stomach with her feet dangling and we did her hand first. I think it was her right hand but I’m not even sure anymore. We did her hand prints twice (same hand) then her feet (I think that was her right, too). Then the lady gave me her card, a receipt that she did it (she said not to worry about paying her that she’d get the payment later) and a sheet with sayings on it for the plaque. I still don’t know what I’m putting on it. Maybe her name, ‘Honey Bear’, birth and death dates and a saying or maybe even something about CafeMom because I would NOT have been able to do it without them and their donations. <br /><br /><br />The lady then left when she was done (said she got REALLY good prints!) and I laid her back on the bed. Cameron had already gathered together all of our stuff and brought it home, so I didn’t have to worry about that. He had already called me a few times (from home: he’d already dropped his mom off) and was really upset still and needed me to come home, so I didn’t stay for her last bath like I REALLY wanted. I figured Harley wouldn’t mind if I went home to Daddy because he really needed me. My thought almost exactly was that Harley had already passed and instead of staying and giving her a bath that I needed to get home to Cameron, who was still living. I have a small twinge of regret, but I know in my heart that I did the right thing. <br /><br /><br />Leaving her there, lifeless, on that hospital bed in the ‘F’ wing of the ICU at Phoenix Children’s Hospital was the hardest thing to do. I took pictures and told her I loved her, knowing she’d always be with me now and could enjoy her existence again. I didn’t think I could do it, but I did. I left her body there, alone, with Bree, her nurse to go home to my empty nest. I left the hospital where we’d called home for the last time, empty handed and broken hearted.<br /><br /><br />While in the hospital, we’d always slip and say things like “We have to be getting home now.” When referring to the hospital. I joked that “Home is where the Honey Bear is.” or “Home is where the Harley is.” When I got home that night, after 1am and after the long car ride home with my parents (and after stopping at McDonalds to get something for Cameron and I to force down our throats) I realized how true that was. For 14 months we never thought about where ‘Home’ was and what it meant. It was just some place that we stayed at, ate at, slept at, etc. As soon as I stepped in the door and saw Cameron on the couch, distraught with no T.V. or video games on (which is very unusual for our house) I realized how empty this building really was. It wasn’t our ‘Home’ anymore. Home is where your family is, the ones you love and care for. The one we love and longed to care for was now in heaven. <br /><br /><br />Her empty body, just a shell, a vessel for her beautiful soul, was left behind at the hospital. I am so thankful we transferred to Phoenix Children’s Hospital. I know this may sound morbid, but I felt some peace with the fact that her body would be at the hospital’s morgue with other children, instead of adults. I feel more precautions should be made and more respect should be shown when it’s a child’s body, especially an infant’s, ESPECIALLY MY daughter. Going off of how the rest of the hospital staff had treated Harley (and us) I wasn’t concerned. I know they (regrettably) have children earn their angel wings almost every day and they have a good reputation of being sensitive to patients’ and families’ feelings, very empathetic. I feel like every single person that works there, from the doctors and nurses to the cafeteria workers and janitors, love children very much. Everyone there cared so much for the kids; I would not hesitate to recommend PCH to ANYONE and EVERYONE.<br /><br /><br />That night, we brought all our stuff in the house from the hospital (and that’s all it was: STUFF. I’ve realized cars, houses, electronics, etc. is just STUFF. I don’t care about STUFF anymore. I could have my whole house robbed, car stolen, bank account depleted, etc. and it wouldn’t upset me as much now as before Harley got sick. It wouldn’t feel like the end of the world like it would have back then…). We just laid it on the ground in front of the T.V. in the living room. We sat on the couch, drained, wondering what to do next. It eventually ended up in her crib (also in the living room) which is where it still is today. We didn’t sleep very much that night; Cameron brought our top mattress out to the living room (we always did that so we could hear Harley’s alarms) and we just kind of laid there and felt depressed. <br /><br /><br />That’s my story of the day Harley earned her sweet angel wings.<br /><br /><br />-Katie Marie Pollock<br />Eternal Mother of Harley Kayleen CarsonMommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-90866779210370090222009-09-02T13:52:00.000-05:002009-09-02T13:54:17.080-05:00Another Raffle<a href="http://emmydollface.blogspot.com/2009/09/sling-raffle-for-harleys-parents.html">Emily</a> is holding a raffle for a customized baby sling. Go check her out. All proceeds are going to Katie and Cameron.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-62197479905115630992009-09-01T18:36:00.000-05:002009-09-01T18:38:52.623-05:00RaffleMy friend <a href="http://carleighmckenna.blogspot.com/2009/08/harley-is-in-heaven.html">Holly</a> is holding a raffle to raise some money to help Katie pay for funeral expenses. She is raffling a pink Coach purse. If you are intreseted in helping out go <a href="http://carleighmckenna.blogspot.com/2009/08/harley-is-in-heaven.html">here</a>. The raffle will end Friday. Thanks for all your help!MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-46105377433620843372009-08-29T15:00:00.001-05:002009-08-29T15:02:55.199-05:00Balloons For Harley<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb2hWqQzfjPx4Kdl6NAfImQst_61JwYtWnxIGEXyziHDtiie6PUshr1CUo5z0hY4EfySjO_eoe1yEjNd9Oa9JsugcgZCUcvKlcIwjw3z9nJ8Bb-EJkwyQkOzJVWoQkgjg7lTmUc4Xjo78/s1600-h/DSCF9146.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb2hWqQzfjPx4Kdl6NAfImQst_61JwYtWnxIGEXyziHDtiie6PUshr1CUo5z0hY4EfySjO_eoe1yEjNd9Oa9JsugcgZCUcvKlcIwjw3z9nJ8Bb-EJkwyQkOzJVWoQkgjg7lTmUc4Xjo78/s200/DSCF9146.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5375478674369166018" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYQMHtHb0cPcFMDHTEQPo0LjC-O7CYtH9MbeoNlQNh38GRh8Z_OFlv2AgSl1lmW_I29w5yIBDGHjHQVN-cmIdvfgbdhuRSSJ-TqsYJ59Zhl0M8LIbHipS3H_So0bkCQOI_oskYYbU1uw/s1600-h/DSCF9145.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYQMHtHb0cPcFMDHTEQPo0LjC-O7CYtH9MbeoNlQNh38GRh8Z_OFlv2AgSl1lmW_I29w5yIBDGHjHQVN-cmIdvfgbdhuRSSJ-TqsYJ59Zhl0M8LIbHipS3H_So0bkCQOI_oskYYbU1uw/s200/DSCF9145.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5375478661087272834" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRle3F-zKBdlM4-tjqRu83kvIc3FQTuTIMYyhm2xHnAe-fyoZxp4whQPuAhrspW-V__IH2Mx6mIL4DFJ0zMD_H-cVe2sQ2ej-4klw4fjRw9GSp0KaEJvT9J159DFsu2cp3mjUpuMnu8fI/s1600-h/DSCF9142.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRle3F-zKBdlM4-tjqRu83kvIc3FQTuTIMYyhm2xHnAe-fyoZxp4whQPuAhrspW-V__IH2Mx6mIL4DFJ0zMD_H-cVe2sQ2ej-4klw4fjRw9GSp0KaEJvT9J159DFsu2cp3mjUpuMnu8fI/s200/DSCF9142.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5375478653839546930" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0NNQAxAmhxkzGWsx9IU0Yq6qzYBIAdvxNWm29kvj72d_lLGERZjVW-cjvgc1RCBIdaGVkbZHTtlmE-3wrei16Opu0M64ieVxHLdTSJXhW21kxZH_IwIZJ8kiAvSTxLbASo-wRm_aHsFs/s1600-h/DSCF9134.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0NNQAxAmhxkzGWsx9IU0Yq6qzYBIAdvxNWm29kvj72d_lLGERZjVW-cjvgc1RCBIdaGVkbZHTtlmE-3wrei16Opu0M64ieVxHLdTSJXhW21kxZH_IwIZJ8kiAvSTxLbASo-wRm_aHsFs/s200/DSCF9134.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5375478639801445842" /></a>MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-70069024816762014062009-08-26T21:29:00.003-05:002009-08-26T21:30:48.027-05:00Flowers Have Been OrderedThanks to all those who donated. I have ordered the flowers.<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy59E4p2YEhyphenhyphenkxvWb476bHKkq2a-1isLW0i5J2vkX7cnA_gthAatiPhcpzL21VIjtOQYy59JTeDyc3uAmZwvZIpizuG7EBEG1sPh1LG9BQ-KTDZczfVzQ82pY1c-xgwa-fXSISwIjYSgY/s1600-h/TF184-3.jpg"><img style="cursor:pointer; cursor:hand;width: 178px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhy59E4p2YEhyphenhyphenkxvWb476bHKkq2a-1isLW0i5J2vkX7cnA_gthAatiPhcpzL21VIjtOQYy59JTeDyc3uAmZwvZIpizuG7EBEG1sPh1LG9BQ-KTDZczfVzQ82pY1c-xgwa-fXSISwIjYSgY/s200/TF184-3.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5374465231729366402" /></a><br /><br />We are thinking of you during this rough time. Harley has touched many lived. She is loved by many and will continue to be loved.<br />SIGNED: The Cafemom MomsMommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-56912447086012849592009-08-26T19:37:00.001-05:002009-08-26T19:37:21.912-05:00Services For HarleyHarley's services- Friday, August 28; viewing @ 12:30pm with services to follow @ 2pm. Community Church of Joy 21000 N. 75th Ave. Glendale, AZ 85308.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-84908071451266740712009-08-26T18:57:00.000-05:002009-08-26T18:58:30.252-05:00Talked to KatieToday...Katie said she is doing better than she thought. She is getting on the funeral stuff figured out. She wants to thank everyone for their support and donations. She said the casting lady got there right after she passed and they got a good print. I asked her if there was anything she needed and she said that she needed money to pay bills.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-64607678391724325712009-08-25T23:44:00.003-05:002009-08-25T23:48:46.291-05:00Tag for Balloons.<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYf5EQpM-rcpK5Hh0E5NMoEiS07vFAS3AvpDHMK6NeSUOf1PHs5esOkV0G9YIMk4khYl6MeNq21Sjz-pyJC7uTfsqYWraMyEw_gWTr8oO24UdEndgoUAqzhSe4Jv8G6hA_DH5onLbYnlE/s1600-h/Harley+Balloon+Tag..jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYf5EQpM-rcpK5Hh0E5NMoEiS07vFAS3AvpDHMK6NeSUOf1PHs5esOkV0G9YIMk4khYl6MeNq21Sjz-pyJC7uTfsqYWraMyEw_gWTr8oO24UdEndgoUAqzhSe4Jv8G6hA_DH5onLbYnlE/s200/Harley+Balloon+Tag..jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5374129389621457810" /></a><br />A fellow follower, <a href="http://emmydollface.blogspot.com/">Emily</a>, has made a tag to attach to the balloons. Thanks for participating.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-31674172164350519862009-08-25T11:55:00.000-05:002009-08-25T11:56:13.819-05:00FlowersI want to get a big flower display for Katie. If you are interested in helping out there is a pay pal button at the top of the screen. Thank in advance.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-42606609036220089022009-08-25T10:49:00.003-05:002009-08-25T10:51:35.296-05:00Balloon ReleaseWe are going to do a balloon release for Harley on Saturday Aug. 29th at 1pm CST. The color we have chosen is purple. If you would like to take pictures and email them to me, we are going to put them together for something for Katie. My email is sissygurl_02@yahoo.com. Thanks again.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com3tag:blogger.com,1999:blog-2267925948200801473.post-3536262187015461482009-08-25T00:03:00.000-05:002009-08-25T00:04:02.293-05:00Harley has gone to see Jesus....Katie just called me and said little Harley has passed. She said that Harley had waited until they got back(The had gone to take a shower) and then she passed. Please keep Katie and Cameron in your thoughts and prayers.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com7tag:blogger.com,1999:blog-2267925948200801473.post-4567176008591356842009-08-24T22:57:00.001-05:002009-08-24T22:59:07.244-05:00Keep Praying.Harley had another xray done today. Her pnuemonia is getting worse. She is also seizuring and the meds are not stopping them anymore. They will probably be putting her on a ventilator soon. Please keep praying!MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-16626838332740149162009-08-24T12:18:00.001-05:002009-08-24T12:40:58.361-05:008-24-09~~~Updated~~~~Harley woke up last night! Her CT scan is set for sometime this morning.<br /><br /><br />Cat scan was just done and there was no change in Harley's brain. They are goint to put off the surgery until they have to. Katie said they have moved her to a "big girl bed" so Mommy and Daddy can snuggle with her.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com2tag:blogger.com,1999:blog-2267925948200801473.post-19698101853005286752009-08-23T16:29:00.001-05:002009-08-23T16:29:34.571-05:00UpdateThey are not doing the surgery today. They are going to do a CT scan tomorrow and decide then. Katie says she is a little more responsive today!MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-29090099931985118492009-08-23T12:26:00.001-05:002009-08-23T12:26:42.560-05:00Katie posted this on Myspace<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDGkxjfXU8ptBLXZidHAOBmpMsMlP89yVJ7c51yzCGudHEWBXBzwBXrqOrJdWx6nQseXKbSEtc-Bn_jqrY1AGu7zyxGDEScNKDgQDTMkd3nn2zqWx2qRB6ODQKjgXCz1Dpo0wBKyjiPyA/s1600-h/l_e95c0605a476464895c398734d3cd016.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDGkxjfXU8ptBLXZidHAOBmpMsMlP89yVJ7c51yzCGudHEWBXBzwBXrqOrJdWx6nQseXKbSEtc-Bn_jqrY1AGu7zyxGDEScNKDgQDTMkd3nn2zqWx2qRB6ODQKjgXCz1Dpo0wBKyjiPyA/s200/l_e95c0605a476464895c398734d3cd016.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5373211936807979810" /></a><br />Harley was basically unresponsive all yesterday besides when she opened her eyes & peeked at me twice when I first saw her and she squeezed Cameron and mine's hands once each. We moved up to the PICU where they did a CT scan and found bleeding in her brain from her brain shrinking and the veins rupturing. She also has pneumonia all over both lungs. They scheduled brain surgery today at 2pm to relieve pressure in her brain, but only if her blood can clot by then since she was on blood thinners.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com0tag:blogger.com,1999:blog-2267925948200801473.post-61780126621569467132009-08-23T02:08:00.000-05:002009-08-23T02:11:48.426-05:008-23-09 2am UpdateHarley has pneumonia in both lungs and bleeding on her brain. They are going to do surgery @ 2pm to relieve some pressure. Keep praying for her and her family.MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-30264489368948092502009-08-22T23:08:00.000-05:002009-08-22T23:09:08.582-05:008-22-09 11PMI talked to Katie and she said Harley has opened her eyes a few times and has squeezed her and Cameron's hands. Keep praying for her and her family!MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com1tag:blogger.com,1999:blog-2267925948200801473.post-40360589993890475762009-08-22T23:06:00.001-05:002009-08-22T23:08:27.613-05:008-22-09 9PMHarley and her family could use your prayers now more than ever! Harley has fallen into a sort of deep sleep and has not awoken, the Drs are unsure if she will wake up!<br /><br />Please Keep Them In Your Thoughts!MommyIvyhttp://www.blogger.com/profile/08138273897085235441noreply@blogger.com2